Contributing data
By contributing and accessing data, you can help address knowledge gaps and improve outcomes. IDDO standardises and harmonises the individual patient data it receives, enabling more in-depth analyses for novel research questions from existing data.
How to contribute data
- Register with IDDO (if you haven’t already)
- Then you can:
- Edit previous submissions
- Make a new contribution
Before you upload new study data, do:
- Name your dataset
- Read the IDDO Terms of Submission before submitting
- Upload your study files in any format
- Upload supporting information such as protocols, publications and data dictionaries
- Add additional information such as the details of any additional users that you would like to have access to the account, the PubMed ID if your dataset has been published, and any notes for our data managers.
Our data managers will curate the data to the standardised platform structure to enable pooled analyses. They may contact you with questions about the data.
Contributors may be invited to form or join collaborative study groups which take advantage of the common data formats to perform pooled analyses.
Questions and technical issues
If you have any questions about contributing data, or have any technical issues with the submission process, please email chagas@iddo.org. Please include a screenshot of the issue and your user name.
Data Ownership
Ownership of data received by IDDO remains with the data contributor and no limitations are placed on their use of their own data. The data contributor has the right to withdraw their data from the platform at any time.
IDDO is subject to the same rules for data access as any other data requestor. Under the Terms of Submission, IDDO waives all rights to the data and its role is limited to data curation and the provision of managed access to data for research only.