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This Policy defines what constitutes a real or perceived conflict of interest and outlines the approach for managing conflicts as they arise. The scope of the Policy covers all members of IDDO's governance committess, including their supporting Secretariat function at IDDO.

Please contact us via email on info@iddo.org for the detailed IDDO Conflict of Interest Policy.

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These Terms of Reference are produced by the independent Data Access Committee and describe their purpose, operation and composition.

Please contact us via email on info@iddo.org for the detailed IDDO Data Access Committee Terms of Reference

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Please contact us via email on info@iddo.org for the detailed IDDO Data Access Guidelines 

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This document records and demonstrates how IDDO embeds data protection by design and default into its data processing. While not required to complete a DPIA as a processor, IDDO maintains this DPIA as part of its data governance framework to achieve high standards, transparency and confidence in its handling of personal data.

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This document sets out the basis on which the IDDO Data Access Committee makes decisions on applications for data access. It sets out principles of access to data that the Committee works within, the process for approval and data access and the points that the Committee considers when making a decision on applications. 

If you are considering submitting a data access application or working within the Data Access Committee, email us at info@iddo.org to request this document. Please also see our list of frequently asked questions.

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This document provides an overview of the data de-identification framework adopted by IDDO to preserve the privacy and data protection rights of the participants included in the research studies shared with IDDO.