Accessing data

Working with the schistosomiasis and soil-transmitted helminthiases (STHs) research community, IDDO promotes data sharing and data re-use to generate new evidence that improves health and understanding of schistosomiasis and STHs.

Credit: Alaine Kathryn Knipes
i
Credit: Alaine Kathryn Knipes
17,997

TOTAL INDIVIDUAL PATIENT DATA

12

TOTAL NUMBER OF COUNTRIES

2

TOTAL NUMBER OF INSTITUTIONS

32

TOTAL NUMBER OF DATA CONTRIBUTIONS

Accessing data

Researchers will soon be able to request access to schistosomiasis and STHs data held in IDDO’s data repository. If you are interested in requesting data when it becomes available, please get in touch with us at schistosth@iddo.org. Alternately, sign-up to receive our newsletter to stay informed about the latest platform developments and news.

  • You can explore the types and volumes of data contributed to the platform so far using the Data Inventory

As part of our data governance process, we carry out a Data Transfer Risk Assessment to ensure that we comply with the UK’s General Data Protection Regulations (GDPR), and specifically its guide to international transfers. Find out more about the GDPR and guidance on international transfers on the UK Information Commissioner’s Office website.

We are constantly curating new data, so we do occasionally have curated datasets which have not yet been updated into our data inventories: please get in touch dataaccess@iddo.org if you have questions.