Accessing data

1. How to request data

• View data held in the EDP Data Inventory and consult the Research Agenda
• Read the Data Access Guidelines and Data Transfer Agreement
• Apply for ethics approval from the national ethics committees of the countries in which the data were collected. Please submit ethics approvals prior to completion of the Data Access Application Form, including details of the submission status in the ethics section. For further information, see the links below:

   - Guinea: Comite d'éthique recherche en santé

    - Liberia: National Research Ethics Board

    - Sierra Leone: Ethics and Scientific Review Committee

    - Nigeria: National Health Research Ethics Committee

• Download and complete a Data Access Application Form and submit the form to dataaccess@wwarn.org alongside a list of requested studies

As part of our data governance process, we carry out a Data Transfer Risk Assessment to ensure that we comply with the UK’s General Data Protection Regulations (GDPR), and specifically its guide to international transfers. Find out more about the GDPR and guidance on international transfers on the UK Information Commissioner’s Office website.

We are constantly curating new data, so we do occasionally have curated datasets which have not yet been updated into our data inventories: please get in touch dataaccess@iddo.org if you have questions.

2. Once a Data Access request has been submitted

The Ebola Data Access Committee (DAC) manages and oversees all data access applications for reuse of Ebola data, in accordance with the Data Access Guidelines and the Data Transfer Agreement. The DAC aims to review applications and respond to requests within two months of submission. The Data Access Guidelines detail our principles of data access, who can request data and how the DAC operates. The DAC operates under the Terms of Reference.

The technical, governance and ethical framework for our data access strategy has been developed to promote access to data for research, while protecting the rights and privacy of the people and communities from which the data originate, and respecting the investment of the researchers who conducted the studies and collected the data.

While the DAC can provisionally approve an application to access data, transfer of data cannot take place until all relevant ethics approvals have been received from the relevant national ethics committees.

Contact us at EbolaDAC@iddo.org if you have any questions or would like further support.